|Now you will think of my wound every time you eat a tic tac.|
Later that afternoon, I went to a new doctor... a urogynecologist (did you know that they made doctors in that flavor?? I didn't). This is all kind of embarrassing to talk about, but IBD is a disease of taboos and embarrassing problems, so I figure I'll break the silence and just continue. I've been having some pelvic pain that's gotten progressively worse, and a drainage issue that has also gotten progressively worse. We were concerned about a possible fistula between my bladder and my reproductive system, but after some very "interesting" tests and exams, she seemed pretty sure that wasn't the case. Rather, she thinks that... wait for it... I still have an abscess and it is connecting with my uterus and draining and causing some issues. She didn't seem overly alarmed, but started me on some antibiotics and said she'd order an MRI. I had a terrible reaction to one of the tests they did (it involved filling my bladder up with blue dye... doctors can DO that?? Some doctors have all the fun!) - for whatever reason, my body decided it had had enough and I ended up shaking and sweating and dry heaving - my body was NOT happy.
|I did not look like this following the test|
So... this week, my overall joint and muscle pain continued, and I was so miserable and not getting any relief despite the steroids and everything else. Finally, on Thursday evening, I went to the ER, where they juiced me up with all kinds of good meds. Unfortunately, even THAT barely took the edge off. It was nuts. I was soo miserable. Thankfully, I was blessed with two very, very nice nurses and a wonderful NP (and one not-so-wonderful doctor, but I only had to see him for a few minutes, and my interaction with him was surely colored by my extreme fatigue, pain and feeling-awfulness). My white count came back rather elevated - quite a jump from the last labs I'd had, so I figured I was definitely inflamed or something. The doctor discussed admitting me, but a final round of meds did the trick and I went home. I had been hospital-free since July, so I was very sad to break that record, but the relief was pretty desperately needed.
Friday I started the ever-so-fun journey of trying to decide which doctor to even call to get some longer-term relief. I left messages at the Rheum and Pain doctors. The Rheum nurse called back and told me to also call the Urogyn dr, which I did...
|I think I need this phone|
Dr. Saturday had given me his cell number, since he's awesome like that, and so... I called it. On a Friday afternoon, because that's what time it was by the time I got off the phone with the Rheum doctor. He is awesome, so he got me scheduled for an MRI (not a CT scan, because he's awesome) and an appointment... for Saturday, because he's Dr. Saturday, after all.
So that catches me up to today. I got the MRI, saw Dr. Saturday... and... the MRI didn't show any abscesses that they could see - some fluid from a ruptured cyst, but that was it. But with the overall clinical picture - the low-grade fevers, feeling so badly, elevated white count, and pelvic pain, and drainage, he was rather concerned and wanted to check things out. So... on Tuesday, I am having an Exam Under Anesthesia (basically a small surgery although hopefully without cuts) to assess what's going on, where the drainage is coming from (where the abscess is) and figure out what to do. He felt that he was the more appropriate doctor to do this, not the Urogyn, since he is most familiar with my anatomy and issues. I am inclined to agree - he's done some pretty weird surgeries to my body, so I'd rather he try to sort out whatever issues I'm having than have someone else trying to figure it out.
So, why does having some kind of pelvic infection cause systemic pain issues? I have no idea, but I think that it's happened to me a couple times before - like before I had my J pouch out, and in between my surgeries last spring. I think that whatever's going on really started flaring up back in late January when I started having all the adrenal issues again out of the blue...then my pain started flaring and it's all kind of spiraled down from there. I've also lost about 5 lbs, although I'm eating well and my appetite is quite good. Dunno if that's coincidence or not, but I definitely feel like my body's been struggling.
Tuesday morning, I will go have the procedure. If Dr. Saturday sees nothing, then I dunno what we do. If he sees whatever's causing the issue, then he can 1. try to fix it while I'm under, or 2. wake me up and do more surgery later. So I'm really not sure what to expect or want or think... but thankfully, that's not my job. ;) My job is to just keep trusting in God, the One who is in control of not just my confusing body and my doctors, but the whole universe. So that's a pretty secure place to be.