|See how cute, Dad?|
|Just a spoonful will do!|
I feel like my joints have gotten a lot better over the last two weeks - they feel a lot stronger, and I don't limp as much - I'm less stiff. That's good. The bad news is that I do still have that inflammation in my joints even while on Prednisone. So, JP Dr. discussed that I may need another medication in order to get the autoimmune inflammation in my body under control, a biologic medication, likely Cimzia. But first, I need to finish tapering off steroids in order to see what my joints are like without roids in my system. She also wanted to inject some of the more inflamed joints injected with a steroid shot. Since all my joints hurt, even ones that aren't visibly swollen, I was not sure how much it would help me, so I declined, but it's something to at least consider for the future.
Also... I told them about the weight gain (and the massive appetite!). Since I've been on steroids numerous times for much longer and at higher doses without gaining a pound (except in my face), we don't think they are to blame. Another candidate is one of my nerve pain medicines. I think we can categorically state that my pain is NOT nerve pain, as I've tried several of these meds, and not a one of them has changed my pain. Since it isn't helping, and it's known for causing the weight gain, the JPs agreed that I should begin the process of tapering off of it over the next couple weeks. Apparently the withdrawal can be quite vicious, and although I'm following a tapering plan, I am feeling very wiped out and kind of foggy - could be from the withdrawal, could be from the steroid tapering, could be from my Meth shot, could be POTS, could be just the autoimmune inflammation... who knows?
The JP Doc emphasized that I need to be doing some kind of exercise every single day to try to "dig myself out of this hole" that I'm in because of surgery, an insanely long hospital stay, and my constant arthritis symptoms, pain, POTS symptoms, adrenal issues, etc. I have been trying, but will renew my efforts to be consistent every single day. I will make myself a sticker chart, and that shall serve as huge motivation for me. Maybe if I exercise every day for a month, I'll take myself out for ice cream. ;)
So far, I've done my exercises every day (it's been three days. Go me!).