It was an "easy" appointment, but sometimes it's frustrating to feel so awful, then be told that you're doing great. I did have a few really good days last week, so I lived it up to the fullest on those days! Since Friday evening, however, I've barely gotten out of bed, and I've been feeling nauseated and having pelvic pain again, which is concerning. Something just isn't quite right.
I talked to the JP NP (Joint Practitioner [Rheumatology] Nurse Practitioner) on the phone today. I asked her one of those tricky multiple choice questions:
a. an arthritis flare?JP NP decided that she couldn't answer this question by herself or over the phone, so she gave me a semi-emergency appointment to see the JP Dr tomorrow.
b. a POTS (dysautonomia) flare?
c. an adrenal issue?
d. another abscess?
e. more than one of the above?
The million dollar question is: How do we determine which issues are causing my symptoms?
I don't know if JP Dr will have an answer for me out of this multiple choice, but hopefully she can narrow things down and point me in the right direction. I know that they really want me to start Cimzia, a biologic treatment, but I am hesitant to start those shots for a number of reasons. And while I believe that an arthritis flare is definitely a big factor in how I'm feeling, I think that there are multiple factors playing a role in how I'm feeling. So I'd hate to start some big-gun arthritis medication, and still feel awful because some other issue is responsible for my symptoms.
I've been experimenting with a few of my meds, as there are multiple choices for potential culprits in the fatigue issue. So far, I haven't found a pill that's to blame, but I have been able to reduce the dosage and/or taper off some meds, so that's positive. I also am having a very tough time tolerating my weekly immunosuppressant shot. I "shoot up" on Friday nights, and from Saturday night through Sunday evening, I feel like something the dog dragged home. I didn't experience this severe a reaction when I was at a lower dose, and it seems that the "hangover" is more intense each week. The cough syrup trick unfortunately hasn't helped much, if at all, with the side effects. Maybe I should try menudo...
Romans 8:18-25, I may groan along with all of creation as I endure the sufferings of this present life, but the suffering I face here is nothing compared to the inheritance I have in Christ, my sure hope! With perseverance, I am waiting eagerly for my adoption as God's daughter, and for the redemption of my body! So please pray that, regardless of what choices I'm presented with at the doctor, I will choose to have a God-honoring attitude.
I am completely amazed at God's incredible provision and goodness to me! If you haven't already seen it, please check out Help4Hannah, a website set up by my dear friend Dennis!